The B.C. Ministry of Health has determined that it will no longer fund access to a specialized drug for a terminally ill nine-year-old girl. Charleigh Pollock has a neurological disorder called Batten disease that leaves her with recurring severe seizures and mobility loss, and will eventually cut her young life short. Her mother, Jori Fales, was informed on Wednesday that her daughter’s final government-funded treatment will be on Thursday. Fales says a drug called Brineura has stabilized Charleigh’s condition and radically improved her quality of life since her 2019 diagnosis. The drug is expensive, carrying an annual bill for the twice-monthly infusions of about $1 million. As Richard Zussman reports, B.C.'s minister of health says clinical evidence has shown that the drug is no longer benefiting the young girl. For more info, please go to https://globalnews.ca/news/11248056/terminally-ill-bc-girl-extremely-rare-disease-no-drug-funding/ Subscribe to Global News Channel HERE: http://bit.ly/20fcXDc Like Global News on Facebook HERE: http://bit.ly/255GMJQ Follow Global News on X HERE: http://bit.ly/1Toz8mt Follow Global News on Instagram HERE: https://bit.ly/2QZaZIB #GlobalNews #Healthcare #BattenDisease #BC For more info, please go to https://globalnews.ca Subscribe to Global News Channel HERE: http://bit.ly/20fcXDc Like Global News on Facebook HERE: http://bit.ly/255GMJQ Follow Global News on X HERE: http://bit.ly/1Toz8mt Follow Global News on Instagram HERE: https://bit.ly/2QZaZIB #GlobalNews